Element 11 (the Utah Burn)/ Fibro crap

[wolfrose]

DSCF1884
Originally uploaded by Gwen Wolfrose

Last weekend was the Utah Burn otherwise known as Element 11. Like Burning Man but not as large. It's a 21 and over camping event where they make art projects and burn them bonfire style. They had five burns this year. I only made it to three... they were right in front of our camp and I didn't have to travel far to get to them. lol

I had UV reactive dreds in my hair. I was also three or thirty sheets into the wind by the time I took this photo.

In other news, I fired my doctor. I went in on Tuesday to get on Lyrica. He had a student working with him that day and had her see me. She ignored most everything I said. She asked me where I was hurting most that day and I told here around my elbows, the back of my neck and shoulders and down in my hips and lower back. She squeezed on my left elbow and asked if that made it hurt worse and of course it did, duh I can't stand for anything to touch me right now. She left the room and then came back to tell me the places I said I hurt aren't indicative of Fibro *rolls eyes* and so it must be arthritis. Then handed me a prescription for mobic which is a NSAID anti-inflammatory. Now last year the doctor told me never to take ibuprofen again because I have a bleeding ulcer. He signed off on this prescription. WTF? I knew better but I took it anyway. It made me sick of course and it didn't do a fucking thing for my pain.

So Parker goes up to the doctor's office the next day to complain. The nurse calls me later and tells me the doctor said to not take the mobic again (duh) and that he called in another scrip for my ulcer. She said to take that for a week and then let him know how I'm doing. I asked what about my pain problem. She said any anti-inflammatory would irritate my ulcer. I told her that the anti-inflammatory didn't do anything for my pain anyway could he at least give me more flexeril and loratab. She said she would ask. She called back a bit later and said he refused. *growl*

I asked for a referral to a specialist. I refuse to see that man again for ANYTHING!

Comments

[solandra.livejournal.com]

I really want to go to something like that event. We have the Oregon Country Fair which is supposedly pretty crazy, and I'm determined to go this year.

Your ex-doctor sounds like an idiot. I think most doctors don't really understand fibro, though. We have a few specialists here at OHSU that I hear are pretty good, but I guess that doesn't help you unless you want to visit. :(

[desdemmonna.livejournal.com]

You look frickin amazing in that picture ^_^...

I'm so sorry you are having some issues with the damn doctor, the woman I rent from could tell you some stories oh gods :(

[rstormcrow.livejournal.com]

I told her that the anti-inflammatory didn't do anything for my pain anyway could he at least give me more flexeril and loratab. She said she would ask. She called back a bit later and said he refused. *growl*

We, H and I have a great doctor, she had no problems writing up a script for my ADD and Harriet's many fibro scripts.

I would lodge a complaint with the State medical board.

also,

This came via Pag san...

From: A. Marina Fournier <saffronrose@>

My new employer, Dr. Gwen Stritter, is a consulting oncologist
(specializing in breast cancers and what can follow) and chronic pain
management/relief, is a patient advocate rather than a clinical
physician. Her website, strittermed.org, may prove useful to some of
you, or someone you know. She is a very compassionate listener and
researcher--she offers services "beyond the second opinion". Located
in San Mateo County, California, she deals with patients via email and
phone. Her first consultation will be a 2 hour phone call once she
has received pertinent medical data. What follows depends on the
case. She does work on a sliding scale for those whose insurance does
not cover her services, or for those in a strapped financial
condition, esp. when it's from fighting with medical costs and
fruitless searches for a better answer.


Marina

[gwenwolfrose.livejournal.com]

Thank you so much.

[teal-cuttlefish.livejournal.com]

Ugh, can you get completely away from that toad of a doctor? Sounds like he's decided that Fibro is "all in your head," now when there is actual scientific evidence of it. Definitely find a better doctor, even for a cough!

[lildrafire.livejournal.com]

Are you seeing a rheumatologist? Mine doesn't hesitate to give me pain meds. Don't settle--find a doctor that will listen.

[gwenwolfrose.livejournal.com]

I'm looking for a rheumatologist now. I'll not be undiagnosed by a student and have the doctor accept it tyvm.